Wednesday, April 15, 2009

Therapy Appointments

The cousins on Easter! This was the best picture I could get of the three of them!

Not crawling yet...but getting there!!

We have increased Mya's tube feedings to 150 cc...which means she is up to 5 oz.!!!! She gets 5 oz. of formula every 3-3 1/2 hours and it still takes us an hour for each feeding. She still gets 7 tube feeding a day. She is tolerating the volume very well. Usually she only throws up once per day.

We have been struggling with her baby food eating again. Things went horribly at the feeding therapist in Fishers on Monday. Colleen made the comment that Mya was not acting like the same child she saw last week. She has ups and downs with eating and I think that is going to be the case for awhile. We tried giving her a soft noodle and she ended up gagging and throwing up every where. I guess we know she is not ready for any type of solids.

On the other hand the physical therapist was very happy with the improvements in Mya physically. She gave us a few new exercises so we can continue to strengthen her upper body. She is now turning her left leg into crawling position now we just need to work on the right leg! She can hold herself up in crawling position but just rocks back and forth. No crawling yet....but she will get there!

We are getting a feeding evaluation done at Riley on Friday. Finally.....we have been waiting for this appointment for over a month!! Hopefully between Colleen in Fishers and Riley's feeding therapist we can get this girl eating! She has so much potential we just have to get over this hump!!


  1. Go Mya!! That's awesome that she's up to 5 ounces at a time! I'm so excited for you guys.

  2. Good Luck today!!!! Luv ya!