Saturday, April 25, 2009

Roller Coaster Ride!

Well...the last week has been a roller coaster ride to say the least! Mya started throwing up a lot over the last week. We have been keeping a log of the times she eats and amounts including baby food. We started noticing a trend of her throwing up again in the late evening and during the night feedings.

I finally broke down and called her doctor at Riley on Tuesday. She talked with a dietitian and they suggested that we try and fortify the formula again. (She can get the same amount of calories but in a smaller volume) We have tried this in the past and it did not work...but it had been several months since we tried. So....we thought we would give it a shot. Not surprisingly it did not help.

I did not want to go the entire weekend so I called Riley back first thing Friday morning. They wanted to get a current weight so I took her to Dr. Woods office at 9:00 yesterday morning. I was to call them back with the weight and then Dr. Dusick would call me back with a new plan.

Well....the day got worse. Mya actually lost a few ounces since her g-tube surgery 3 weeks ago. She only weighted 17 lbs 1oz. and was 26 3/4 inches long. I guess all the throwing up is finally catching up with her.

I finally got a phone call from Dr. Dusick early afternoon. She was disappointed with her weight but felt confident that if we get the vomiting under control we will be able to get her weight back up. She gave us two option was to try doing with night feedings with a syringe and not the pump. That way if the amount was too excessive it could just back up in the syringe instead of her throwing it up. The second option was to run the night feedings over several hours instead of in one hour.

She explained that some things work better for certain children and we would just have to do trial and error until we find out what works best for her. Not what I want to hear!!! After discussing it with Matt we decided to do the night feedings in over 2 1/2 hours instead of 1 hour. (So, her pump ran for 5 hours straight to get the two feedings in.)

Although she threw up her 8:00 P.M. bottle she did hold down the two night feedings last night. We are going to try it again tonight and see what happens. We have also started her back on Prevacid. Although it will not stop her throwing up it will cut down the acid content in the throw up so it does not damage her esophagus.

So I guess we will see what happens. She goes for her 9 month check up next Thursday so we will see what her weight does in the next week! I told the doctor that I feel like I'm in a bad dream! I feel like I am doing everything I can...but nothing seems to work! Please say an extra prayer for her!

1 comment:

  1. Oh, gosh. I'm praying for you guys. Don't know if you've been keeping up with my blog, but we've been dealing with VERY similar issues; I know exactly what you mean by "roller coaster." It's so hard to be told that there's just that not much they can do about it.
    I hope things get better for Mya! Hang in there, Amanda. I'm thinking of you guys.