Sunday, February 21, 2010

Starting up on week 6

We are starting week 6 of therapy tomorrow! I can't believe we have already been here this long! All things considered it has went relatively fast. The weather was really nice for the last couple weeks but it is suppose to be raining on and off this week.

Mya is doing well! It has almost been three weeks without using the g-tube at all! We had some problems with constipation and what we call "beached whale syndrome" since the last time I blogged. This kid was so over loaded with food she would come out of sessions and just plop on the ground and literally acted like a beached whale! It only lasted a few days and she is back to her crazy...bubbly self! As for the constipation we are giving her a small dose of miralax to help her out a bit. The food she eats has a lot of rice cereal...milk...cheese...chicken which can cause a bit of a problem. It's very common especially when these kind of kids are not used to the volumes of food she is getting now!

The vomiting is getting much more manageable. She rarely vomits with the food at this point. When she has milk she more or less has wet burps. We pretty much bi-passed the whole bottle/burping phase with Mya so she is basically having to learn to burp as if she were an infant. So at least 2-3 times a day we seem to have a little spit up. Occasionally when the burp and spit up come Mya just wants to keep throwing up and revert back to old habits. We are seeing less and less of this happening but it will take time to completely stop.

Overall we are completely happy with her progress she has made here. She loves to drink which is totally crazy since we came here with a kid that would only drink 1-2 ounces in a 24 hour period! But the down fall is Mya has been waking up at all hours of the night wanting her milk!! Last night we woke up to her crying out by the fridge saying..."Milk...Milk." Who would have thought that our little girl would be asking...almost begging for a drink! How crazy! She also goes up to all her stuffed animals and toys and gives them a drink as well! At least she is willing to share I guess!

The plan for now is to get everything set in stone with one more week of therapy with Ben. Then we will have a week of training. Followed by 1-2 weeks on our own at the hotel before we head back home. So...we hope to be home mid-March!

California is nice....but not our home that's for sure! We are ready to get back to everyday living! See our family and our friends!!! I am excited to tackle this head on when we get home and get things back to normal! We will be in contact with Ben probably everyday for the first few weeks and he will be there to support us and transition her back on table foods in a few months!

Hope everyone had a great weekend! We are also starting to work on teeth brushing this week so it should be interesting!

1 comment:

  1. We miss you guys already! Can't wait for you to get home... but we know you are where you need to be and patience at this point is the best thing for everyone. So I am trying my best at being patient!!!! How about some new pictures of Mya with that big smile of hers :)!
    Love you all,
    Grandma Bev & Grandpa Rick