Today we got back in the swing of things....Mya took a total of 1285 calories today and didn't actually lose any weight over the weekend! She got back in the groove of drinking again after lunch! We actually had a horrible night on Sunday. Mya woke up multiple times screaming bloody murder for what seemed like forever. She was so upset that we were having a hard time giving her tube feedings because the milk would not even go down! She was waking up hungry but not knowing what to do about it!
I am so glad we are back to therapy and working straight through this weekend! Hopefully tomorrow will be Mya's first day without use of her g-tube! That's the plan anyways! She actually did very well her last feeding and went without a peep for over half of it. So we are hoping she starts to let her guard down a bit with Ben. She is really warming up to Jessica and smiles and plays with her. We are adding in a drink "snack" in the afternoon to give her more practice with the open cup. But overall today was a step in the right direction.
My parents officially booked plane tickets today to come out and see us for a few days late next week. So, it will be great to see them! Matt and I have never been away this long so it will be great to see a familiar face and I know Mya will be ecstatic!