Monday, February 8, 2010

Day 17 & 18 of Therapy

Day 17 & 18 have been a little tough. Mya just can't seem to be able to tolerate food and milk mixed. Right now we are focusing again on the food and will add milk back in after a few days. She is drinking plenty in between so we are still tube free. This last three weeks has been a roller coaster ride to say the least!

I think the home sickness is officially setting in.....I won't lie! But unfortunately as much as we are ready to come home Mya is not! We will be here for at least three more weeks of therapy and a week of going at it alone here in California before we fly back home. So, mentally we are preparing to be gone for at least another month.

Mya is still pretty miserable during the meals but is running out of ways to retaliate. So far Ben has had a solution to everything she has thrown at him so hopefully soon we can get the drinking under control. The biggest problem right now is getting her to realize she has to burp. Being tube fed almost her entire life she has not had to burp or handle large quantities of anything in her stomach.

On the brighter side! We received a ton of cards, emails, and packages over the week and are so thankful we have people cheering us on back in Indiana! Although the Colts didn't pull off the big win....we were loyal and sported our Colts gear for the big game! We had made a trip to the grocery that day and the man that checked us out was laughing and said..."Well you are the first people I have helped today that are Colts fans!" Talk about feeling like an outcast! People aren't too fond of the Colts here I guess!

1 comment:

  1. Hang in there. I promise this IS just a very small part of your life. Remember "Things are never as good as they seem and things are never as bad as they seem"
    Amanda I know your dad will be there soon to help break up your stay....and we are as glad to have him out of town as you are to have him. hehehe