Wednesday, January 20, 2010

Day 3 of Therapy

I guess the 3rd time is a charm!!! Mya actually has gained over 2 ounces of weight already! She only had gained 1 ounce in over 2 months!!!! Things are definitely going in the right direction! Can you even believe it!!!!

She ended up taking 9.8 ounces of food today for a total of 714 calories!!! That is the most food she has eaten since she was born!!!! We have a long long way to go but Matt and I are seeing a light at the end of the tunnel. (It's a very small light....but hey it's a light!!)

After doing some calculations....Mya typically only gets between 600-700 calories per day with her tube feedings. So, the fact that she ate 714 calories worth of food is HUGE!!! She is still trying her tactics and trying to throw up but the refusal is slowly disappearing. She is still crying during the feedings but that is also slowly disappering.

What a great day! She did vomit with the first 2 feedings of the day, but made it through the entire last feeding vomit free! We are going to have ups and downs since she still does have to eat more than 9.8 ounces of food but we are at least seeing improvement.

We have not even gotten to point that we can work on drinking but may try on Friday if things go well tomorrow. What a day!!! Thank you so much to all our family and friends!! We never could get through this without you!!! Mya is such a special little girl to all of us!!! We just want her to be healthy and I think we are at the right place to accomplish that goal!!!

God is great and he is going to get us through this!!!! Thank you everyone for all your thoughts and prayers!!!

9 comments:

  1. Wow! That's great! We're so glad she's improving. You've waited a long time for this. Love you all!

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  2. Such great news! Hugs and prayers!

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  3. Grandma Bev and Grandpa Rick are so proud of the entire family!! But especially our precious Mya! We miss you all and can't wait to see you soon. Hugs and Kisses

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  4. So happy to hear this! I've been thinking and praying for you guys. I've read all of the blog entries and feel so bad that you guys are going through this. It sounds like your at the best place for little Mya!

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  5. Way to go Mya. Such a trooper! Amanda, you and Matt have never given up and it sounds like the payoff is coming. We will continue to send good thoughts and prayers your way.

    Barb & John

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  6. Wow Amanda I didnt realize how severe this situation was... but it looks like you are well on your way to getting it under control, my thoughts and prayers are with you and your family throughout this entire process... she is a beautiful lil' girl, you will get through this! :) -Lindsay Yenna & Family

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  7. Thank you everyone!!! We will keep updating the blog with her progress!

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  8. just wanted you to know we are thinking of you sounds like things are going well take care hugs and kisses to all love ya shannon and michele

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