Thursday, January 28, 2010

Day 9 of Therapy

Today was by far Mya's best day thus far!! She had a total of 1381 calories of food and drink with Ben today!! That's not even including all the milk she drank with Matt and I today! The vomiting and gagging massively improved today also! It's almost as if a light bulb switched on today!

She is still gagging some but it is definitely improving! Mya has also gained over 9 ounces of weight total! She finally weighs over 20 pounds!!!! We tried a high calorie milk drink and she did throw up after chugging down over 4 ounces of it. But we have now switched her to whole milk and she is doing great with drinking!

We have a ways to go but it is definitely getting better! It's so nice to drive in the car and not have to stress so much about her throwing up everywhere or pull over every 15 minutes or so to give her a tube feeding! If it weren't for the one vomit today she would have been completely tube free today! Darn! So close!

Ben said we have to start acting as though the tube is not there anymore and allow her to drink on her own since she is wanting to so much! I guess my OCD about watching every mL my child gets is over! He was kindly telling me to relax a bit and it is all going to work out!

We have a few kinks to work out here and there but overall we are getting there! It will be a few more weeks until Matt and I will probably actually feed her but eventually it will happen!

We hope to officially take Mya's g-tube out this summer when she is transitioned onto solid foods and is stable for several months! What a great day that will be!!!! I think we are going to have a big celebration!

The weather has finally gotten better so the last two days we have went to the park and went hiking! Much better than that cold Indiana weather! Mya is still talking up a storm and actually said "Excuse me" after she burped today!! How cute is that!!

Thank you again for all your thoughts and prayers!!! God really does have a plan for Mya!!!


  1. How wonderful!! So happy for all of you!

  2. Hi Matt and Amanda. This is Bonnie Butt....I'm just "over the top" happy that Mya is doing so well. It's like reading a miracle in the making! God Bless you all. Thank you for sharing your story. I am so humbled by our God's grace on your family. bjb & ckb