Friday, October 30, 2009


Well....Mya's weight was only 19 lbs. 8 oz. So that means she only gained a half a pound in 3 months. She dropped pretty significantly on the growth chart for her weight. Dr. Woods was glad we are headed to Cincinnati next week to see what they have to say. She didn't seem to discouraged at this point since we have just recently got her 100% off the formula.

Dr. Woods said that it is not affecting her development mentally or physically at this point. So hopefully Cincin has some good advise and the pediasure will help her start to gain some more weight!

We both received our seasonal and H1N1 shots last week so hopefully we will keep all this sickness out of the house!

Tuesday, October 27, 2009

No More Formula!

Mya is officially off formula now!!! YAY!! She is doing really well with it! She is taking 3 ounces of whole milk and 3 ounces of pediasure now. We are doing this mixture 5 times per day which is great because that means no more night feedings unless she wakes up and is hungry!

The home care company is also coming tomorrow to pick up the pump we used since we are doing all boluses now! We have not been using it for over a month so I feel okay with sending it back! We are slowly but surely making progress! The occupational therapist was here yesterday and she was amazed at Mya. She was pointing out the window saying pumpkin and showing her our "doggies." Penny has seen so many changes in her over the last year it's incredible. Mya can now touch her own tongue and not gag so badly that it makes her throw up....she can sip milk up a straw.....and most importantly she can eat! We will leave this coming Monday night for her swallow test on Tuesday morning so I pray that she passes!!! We have been prepping her for it so I really feel like she is safe to swallow thin liquids now.

If she passes then we need a plan to get Mya off these tube feedings. She can drink and can eat...just not enough to stay hydrated and grow! I already feel my stomach turning hoping that she passes this test. It is not an invasive test what so ever. Basically she will be sitting in a special chair with a camera next to her face. They put barium in the liquids and she drinks. As she drinks the camera video tapes and follows the milk down her throat. Either it goes in her stomach or it goes into her lungs!

In the past we have struggled with getting Mya to drink anything during the test. It is in a different environment with doctors and nurses surrounding her. Plus she is not a big drinker anyways!!! I really feel like God is going to take care of her! Things are headed in the right direction for us!! Just one more test!!!!

We go for her 15 month appointment on Thursday so I will send a quick update on her weight. I was hoping she would weigh 20 pounds but I just don't think we are quite there! Thanks again for all your continued prayers!

Wednesday, October 21, 2009

Update far so good with switching Mya off formula. We are half way there! I'm going to wait a few more days and then up the pediasure/whole milk amount! Things have been pretty uneventful around here! Matt has been working many late nights! So Mya and I have had a lot of bonding time!

Mya now knows where her mouth, teeth, tongue, nose, ears, eyes, hair, hands, and feet are!!! She is a smart little cookie!!!! We go next week for her 15 month check up so I will be sure to update everyone on her weight! We have not had a doctors appointment related to her feeding problems for almost 4 weeks now!!! That is the longest we have ever been without an appointment for months!!

Monday, October 12, 2009

Working with Daddy in the shop!

Pumpkin Patch!
(My sister Becky and her two children Emma and Timmy)

Lookin cute!

Mya's first combine ride of harvest this year!

Sleepy baby!!

Mya is finally getting a few more teeth in her mouth! She has 2 more teeth that have popped through and a few more on the way! We have all been struggling with colds around here. Nothing serious but these runny noses are getting old!

Mya is now up to 5 1/2 to 6 ounces on her feedings! Can you believe it! The goal was to get her up to 6 oz. so we are almost there! We are actually going to start the transition off the formula as well. Right now I am mixing pediasure with whole milk. We will give her an ounce of that mixture and the rest formula. We are going to slowly make that transition since her body doesn't typically respond well to change. Eventually she will get her feedings with half whole milk and half pediasure. So she calorie per ounce will still be about 24 to 25 calories her ounce.

She can basically eat any type of food now....just small bites and tiny amounts! She is still drinking thickened liquids from her cup but still just sips with meals. The other day she drank 3 oz. before noon and that was the most she had drank for months!!!

Mya has a huge vocabulary and is in the stage of trying to repeat everything you say!! Tractor, Minnie, and Elmo are a few new words she is saying! We have been staying busy despite all the rain we have been getting! Here are a few updated picture to enjoy!!