Dr. Dusick also told us that in her opinion she thought Mya would need a feeding tube for the next 9-12 months. She spoke with us about putting in a permanent tube in her stomach. That way we would not have to keep putting the NG tube down every 4-5 days or when the little booger pulls it out! We have a surgery consultation on March 24th and her next swallowing test is Friday March 13th.
We now have a feeding therapist and a physical therapist that we work with! Now at 7 months Mya is almost sitting up on her own and is rolling all over the place! She now eats about 2 tablespoons of baby food 1-2 times per day and takes 4 oz. of formula every 3 hours. (She has 7-8 feedings per day) She weighs 15 lbs. 2 oz! We are working really hard with her to get her more physical strong and she is improving! We would like to thank everyone for all their thoughts and prayers!! We will keep updating everyone!