tag:blogger.com,1999:blog-40534255014544521.post7748548113184995759..comments2010-11-19T13:29:50.649-08:00Comments on Mya Marie: Mya got her button!Amanda Holderlyhttp://www.blogger.com/profile/06839841904707523195noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-40534255014544521.post-2134791658058492232009-05-05T19:33:00.000-07:002009-05-05T19:33:00.000-07:00The pump helped us so much too. In the beginning w...The pump helped us so much too. In the beginning we were trying to gravity feed for like 50 minutes... what a pain! <br />Let me know what the g-tube study is. I'm interested to know. <br />Good luck at her appointment!Rachelhttps://www.blogger.com/profile/09930467254509650146noreply@blogger.comtag:blogger.com,1999:blog-40534255014544521.post-70059492975643768752009-05-05T13:43:00.000-07:002009-05-05T13:43:00.000-07:00Yes, we are still using the pump since we have to ...Yes, we are still using the pump since we have to do her feedings over an hour. I couldn't imagine trying to hold the syringe for an hour! She is not crawling yet, but is trying to move all over the place! The pump is great! We see Dr. Dusick at Riley Thursday so I guess we will see what she has to say! They mentioned possibly doing a G-Tube study? Thanks for all your help!Amanda Holderlyhttps://www.blogger.com/profile/06839841904707523195noreply@blogger.comtag:blogger.com,1999:blog-40534255014544521.post-43540244433985437582009-05-04T17:36:00.000-07:002009-05-04T17:36:00.000-07:00They have done a few swallow studies and they are ...They have done a few swallow studies and they are going to do another in June (to see if she's aspirating.) She's also had an endoscope to check for pyloric muscle problems, celiac, etc. <br />What seems to be working for us is to evenly space out her feeds (at least 3 hours apart), not go faster than 120 ml per hour and to limit her solid food intake. We have gone almost a week with no vomiting... fingers crossed this is working! <br />Are you still using a pump with Mya?Rachelhttps://www.blogger.com/profile/09930467254509650146noreply@blogger.comtag:blogger.com,1999:blog-40534255014544521.post-58580601326406872412009-05-02T05:36:00.000-07:002009-05-02T05:36:00.000-07:00Did they do any other tested besides the emptying ...Did they do any other tested besides the emptying scan? We go next Thursday to meet with Dr. Dusick so I hope she can give us more answers! What has been working for you to help the vomiting?Amanda Holderlyhttps://www.blogger.com/profile/06839841904707523195noreply@blogger.comtag:blogger.com,1999:blog-40534255014544521.post-63388351997795470732009-05-01T20:26:00.000-07:002009-05-01T20:26:00.000-07:00Wow! That's awesome that she got the button sooner...Wow! That's awesome that she got the button sooner than you expected! <br />Emme tends to do the exact same thing with food. The more solids she eats, the worse she is and it's almost always in the late afternoon or evening when she gets sick. It amazes me how alike they are.Rachelhttps://www.blogger.com/profile/09930467254509650146noreply@blogger.com